Post Revisited, Reedited, Reworded, Reblogged From Apr 24th 2018
Well That’s Just Typical!
Why oh why do we still read of the ignorance concerning Autism?
It would be easy to simply say that it is just non autistic people, that slam dunk autism, but sadly that’s not entirely true – for in my travels l have seen equally as many autists ridicule and criticise the spectrum, which confuses me somewhat. Their argument is that autism as a spectrum of disorders has ruined their lives, that it makes their lives difficult! Whilst l can understand the aspect of life being difficult, this is not the fault of autism per say, no, this is actually the fault of an ignorant society. Equally as guilty sometimes are those on the spectrum itself. In their bid to be seen, heard, interpreted as ”’normal”’, they belittle the spectrum and those on it.
Then we have those who suspect they might be somewhere on the spectrum but because it is not a fact or they have not been diagnosed, they therefore feel that anyone that suggests they might be is paramount to ridiculous and therefore it is totally justified for them to ignore these people. They obviously are deluded and have no idea what on earth they are on about. These so called suggesters are worthy of humiliation. My father was one of these people.
I long suspected when he was alive that he sat somewhere on the autism spectrum, but to be considered as ‘autistic’ was insultive to him. His interpretation of your suggestion was that you were referring to him as stupid.
In his eyes, those of us on the spectrum are not right, we have problems, we are ill; we are not perhaps disabled as some refer to themselves as, but severely and seriously handicapped by the presence of autism in our lives. And yet as shockingly old fashioned as that is, still l at times hear of fellow autists repeating the same beliefs. My father and my sister alike regarded autism as an excuse that was used, and not for what it is ‘a way of life’
Some of the biggest shocks l get almost on a daily basis is from the younger generation of autist. They are staunchly autistic, and do not misinterpret that, l am all for a strength being clearly displayed for any minority group who is being berated by an ignorance which sadly is what a good portion of society is, despite increased awareness. But l even find some of their anti-neuro beliefs quite alarming!
I don’t like the word Neuro, not any more. When l was first diagnosed as a label ‘neuro’ helped me to understand differences in thinking and perception of societal thought – a them and us attitude if you wish. For the last few years l decided to very rarely use the term neuro or neurotypical, because my own personal belief is that none of us are specifically neuro or specifically autistic.
I prefer to use a more universal term, ‘We are all just different people’. We all have labels, all of us, and l know many people prefer to live only by labels alone – l don’t. When l was diagnosed as an Aspergian, the label was just that – Asperger’s syndrome. It changed when everything was grouped together in the autism spectrum, so now my label is ‘Autistic’. But for me personally, the only good a label serves is to the person it reflects upon – so for me one of my labels is ‘Aspergers’. That doesn’t define all of me, just a part of my unique personality. I was labelled as Rory prior to my diagnosis. I am still labelled as Rory after the diagnosis – now it is more like “Aspergian Rory’. But for me labels only serve one purpose – and that is to identify who we are for us.
I don’t live under the label of Aspergers or autism, because it is just me. I don’t use that label as an excuse, because my autism, is just a way of life, my life. Autism isn’t all of me. The reason l dropped neuro from my language is because l believe that many of us sit on the the spectrum of autism, and l also believe that many of us are also neuro. I used to joke with my partner about being NeuroAspie. The difference is that some on the spectrum have a higher spectrum percentage than others.
Even Stephen Shore said that in a way with his quote …“If you’ve met one person with autism, you’ve met one person with autism” Which clearly means everyone is different, the same indeed can be said for non autists. The real ignorance comes from society as a mass, long held myths that need busting. This is NOT saying that individuals are not guilty of being a critic, they are.
I was a Neuro long before l was an Aspergian with autism, or actually autistic, and there are still parts of my personality which are STILL very typical Neuro. My partner is NOT on the spectrum directly with a diagnosis from either the medical profession or even self-diagnosed. But l think she has some very clear signs of autism spectrum disorders, and also, she is a Grandmother and has two children who now have children of their own, and each of the two families both in her Sons’ family equally as much as her Daughters have children that are now diagnosed as autism spectrum disorders.
My mother is not a diagnosed autist, but l also see very clearly in her both autism traits and bipolar traits. I am officially diagnosed with both Asperger’s and bipolar. My mother was diagnosed and identified as bipolar. My father refused to be looked upon as anything other than ‘normal’, and no he could never define that.
So with so many people undiagnosed or diagnosed clearly showing traits of autism, or displaying neuro or autist behaviours, which would suggest and even science is starting to accept this theory that most of us sit on the spectrum anyway and it is all down to percentages – those who show more ‘autistic behaviours’ are higher on the percentage of the spectrum.
I have seen actually autistic Aspergians and autists alike hiding their spectrum away from so called normal eyes, because the fear of being bullied, ostracised or simply being treated differently is terrifying as a thought, and they pass many a time as neuro with a twist! I already know many Neuro’s with a twist anyway, so where is the difference?
There is already way too much hatred in this world, minority bashing, majority bashing, parties being ostracised for their beliefs because they are different to the next group who believe something different or just the opposite. What does stand out as a continuing continuum is this …
… it doesn’t matter in truth because everyone is ‘atypically typical’ in how they view everyone else, what needs to be done is not to celebrate the differences per se, but to celebrate the acceptance of those differences!
These posts represent my views of my Asperger’s, my autism and may not be the same as others on the spectrum.